Mutation Database
This site is home to an online database that catalogues the changes detected in PKD and mutations to genes. The database is open to researchers and clinical work but the site also has links for patients. The information in the databases is a little difficult at first and takes time, however there is a page that has good information for patients. This site would probably be best for researchers or those invested in learning more about the molecular aspects of PKD. It’s main focus is in dealing with ARPKD but there is information about all forms on the website.
“Mutation Database.” 2 Sept. 2007. Department of Human Genetics at Aachen Universtiy. 4 June 2008. http://www.humgen.rwth-aachen.de/index.asp?subform=home.html&nav=standard_nav.html.
NIDDK Reference Collection
This online reference site is through the NIDDK reference collection. When searching “Polycystic Kidney Disease” the database pulls up over 70 results of articles, information and other useful references. Navigating the Internet can often be difficult, but this site gives reliable references for PKD without the hassle. It would be helpful for anyone who is searching for a wider variety of information about PKD.
“NIDDK Reference Collection.” 2008. National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). 4 June 2008. http://catalog.niddk.nih.gov/resources/index.cfm.
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